Grayson is a handsome 3 year old boy. You couldn't tell by just looking at him, but he was born different from most children. Grayson, by definition, is a SWAN (a term given to Children/Adults who have "a Syndrome without a Name".) He has brain damage, severe Global Developmental Delay and is physically and mentally disabled. He has a rare genetic condition that may never be found.
You may not have heard of many children like Grayson who don't have a diagnosis as they are rare, and they are not publicised. This of course doesn't make them any less important or less worthy of support and treatment, but unfortunately more often than not this is what happens.
Grayson cannot walk or talk, his communicative skills are going to be a struggle and may never come, but physically although his body is weaker than you can imagine and his legs have little to no tone, it is possible he could find a way to move.
Now, Grayson has one fantastic thing on his side. He has an amazing family supporting him. I only know his Mommy, Kara, and I can say she really is fabulous. She so obviously adores Grayson and his little sister Addison, and will do anything to make them happy.
She is so awesome, that in a few months' time, within the event that is Grayson's Great Fun Day (more on this in a minute), she will be shaving her hair off to show her support for Grayson and the charities SWAN UK and Cerebra. (Kara's long hair will then be donated to the Little Princess Trust to make wigs for children who have lost their hair to cancer.)
Grayson's Great Fun Day will take place on the 25th August 2012 in Canterbury, Kent (exact location TBA) and will involve bouncy castles, face painting, yummy cakes, and raffles. Further event information can be found here.
All money raised will be split between the two charities (SWAN UK and Cerebra), and towards funding Grayson's new trike which will enable him to get out and about. It will also help to strengthen his legs and core muscles whilst he is having fun. He won't have to peddle as the special trike will do it for him, moving his legs and working his hip joints that are currently failing him. The trike costs an estimated £1800.
Why am I telling you this? Grayson, although I've not yet met him (I hope to do so in August), has touched my heart in a special way. I see the courage and the love for him his parents have, I read about Grayson's daily challenges and hospital visits and therapy via Kara. I want to do what I can to help this little boy have the life his parents dream of him having. I can't change Grayson's life, but I can support him and his family and help in the little ways I can.
If you'd like to help, here are a few of the ways you can do so:
+ Donate whatever amount of money you can afford on the event fundraising page, here.
+ Donate prizes for the raffles (please contact Kara)
+ Pencil the 25th August in your diary and come have some fun!
+ If you'd prefer to contribute towards Grayson's trike alone, you can do so here.
+ Spread the word! Blog, tweet, share the event link on facebook. Raise awareness.
You can follow @GraysonsGFD for event updates.
Thank you for your support x